Showing posts with label book. Show all posts
Showing posts with label book. Show all posts

Sunday, 26 June 2011

bare arses and tennis and stuff

Week 2 and a routine develops! I got into work most mornings and then home for lunch and then drove myself to the hospital every afternoon for my 3.15 appointment with Linac1 'my' radiation machine. The PICC line settled down this week so all that happened there was the weekly visit to Chemotherapy outpatients to get it  checked out and the dressing changed-that was on Thursday the same day as the radiation review when I get to talk to a review radiographer about any side effects I might need help with. The nausea is easily fixed with a grated ginger/teaspoon of honey drink and no burns yet so it was quite an easy week really. The fatigue is still the most obvious side effect, it comes over me with a suddeness that is nothing like the normal 'phew I'm pooped' kind of tiredness afetr too much housework or a day at the office. I have to lie down immediately with my eyes closed immobile. Five minutes of that and I start to recover enough to grab my ipod to force myself to stay lying down for longer by listening to my fave tunes. The reveiw radiographesr told me  I am officially anaemic and need a blood transfusion . My poor body, poisoned by the chemo which slows down cell growth , can't make enough red blood cells at the moment-I can feel it trying-I drink 2 litres of water every day (cells need lots of water to be made) and just making the cells makes me tired, not having enough of them makes me tired! Because the white cell count is low I have to avoid infection as I won't be able to fight it. Christine and I have bought beetroots and oranges etc to do the Blood Tonic recipe from Jane Sen's Cancer Lifeline Recipes. (Amazon Marketplace bargain...)
Then... the  diahorrea came on cue (2 weeks of radiation to the pelvis=diahorrea. I'm surprised I can spell it after the 18 hours I've just had!! They'd given me some pills when they hooked me up to the chemo in case this happened then but this was radiation diahorrea -was that different? I took my temperature-normal, called the hospital-they tell me the pills are immodium and to take them-it took 4 but they worked and I'm writing this after a good night's sleep. It put paid to my Saturday afternoon trip to the sea though. Christine is here doing some fab nursing care and driving and that had been our plan but we got 5 minutes from home and had to turn back. Southerndown is now on my list of things to do as soon as I'm better (it's growing this list as my life has shrunk to work/hospital /eating/Bleak House on DVD(marvellous).
Because I wanted to know (well you would..) I asked to have information on exactly what the machine did to me very day when it raised me up and made a nasty whining noise at me. The radiographers showed me the photo the machine took of my arse as it lies under the ray gun. It had a neat rectangle centred on my bum-that's what it zaps, front and back. The machine zaps my bum then rotates and zaps the front where the lymph nodes (the ones that could post cancer round my body) are. I am pleased to report that my first thought (voiced I fear) was 'not a bad arse'-happily, losing  my vanity has not been a side effect of my cancer treatment despite living in this  new world of phone conversations about diahorrea and pulling my knickers and tights down every afternoon and lying bare arse naked on a slab while radiographers minutely reposition my legs bum and thighs to line me up accurately for the zapping.
There are always others in the waiting room of Linac1 (LA1). We sit with Wimbledon on a wall mounted telly , a water machine for our dehydration and OK magazine, Country Life and The Lady  for our delectation. There's a certain camaraderie-big ladies knocking back crisps and discussing the 'private' lives of celebrities now have something quite significant in common with me. A very healthy looking  Irishman in a pink T-shirt with a shock of light brown hair asked me how many? It's the big question-how far down the being irradiated route are you? Significant because up till two weeks you won't be experiencing any problems, after that everyone is different-it's the big and frightening unknown. My dentist told me it would be five weeks of hell, this lovely Irishman was on his next to last treatment and told me (we have no shame) that his 'front' was just a little burnt and that he had a touch of constiptaion. His brother in law told me that I had the look of someone who would be fine (his theory, based on people in the waiting room watching over the previous 30 days, was that fat people suffer more because there's more flesh and folds). The thought I may be in the not suffering so much category helped me tremendously throughout this week. When you read forums on the Internet it's mostly people with horrendous problems who post. I know it will be hard but I may get away with minimal discomfort-imagine that!! I can now, thanks to the jolly Irishman.
Despite my life being all upheaved by the above one thing remains true -Life is Sweet. (I've put Natalie Merchant on Spotify)!

Sunday, 12 June 2011

hello and welcome

I'm sitting here with a thin blue tube disappearing into my arm ready for tomorrow when it will be hooked up to a chemical designed to stop my body from replicating cells -something it has faithfully done for me for the last 57 years giving me ever regenerated hair, nails, skin etc. The story of how this thin blue line  came to be where it is is already quite long.
Last October a young woman who wasn't looking where she was driving pulled out of a side road and knocked me off my bike. A few days later because my neck felt funny I went to the doctor who referred me to the hospital for physiotherapy. While I was at the docs I mentioned the recurrence of some bleeding when I went to the loo...and I guess because I am the age I am the doc played safe-anyway this March the other referral came through and I went for a sigmoidoscopy. Not particularly pleasant but a bit of deep breathing (ante natal class styley) was getting me through having a camera up my arse. Then  biopsies starting being taken and I was freaked -they had found something they didn't like the look of. Afterwards i listened while they called the cancer hospital and  they made me an urgent appointment while I sat and had my poor you cup of tea then I cycled to the sea and stared at the ocean  for a bit and went home. The results came back two weeks later. Cancer. I got given a card-the stoma nurse available to me anytime...I went home and started reading about colostomies and anal and rectal cancers .Very quickly appointments came through for a CT scan and an MRI (you lie in a tube for 25 mins with earplugs in while they say what sounds like 'wwwanoth5minuteswellduh' I closed my eyes and journeyed in my mind to somewhere I had been very happy). Lots more research -I made myself look at a Youtube video on how to empty a colostomy bag-I tried to imagine getting to a stage where I could be that person. I read books on how to eat to beat cancer, a directory of cancer resources, found the Penny Brohn clinic website and borrowed 'anti cancer a new way of life' from the library-all these resources are BRILLIANT. I started drinking green tea, roobosh tea, eating Omega 3 mix from the health food shop. Another appointment another doctor another nurse. This time she was a 'we are going to fry your pelvis front and back' nurse. The prognosois was brilliant-They found the earliest cancer they have ever seen-it doesn't show up on the scans, it's microscopic, hardly there at all . They are 95% certain that I can be cured. It's anal cancer-it's rare-they can't say why I have it-it was just bad luck. Bad Luck? There must be a stronger term  than that for such situations? Astoundingly bad luck at the very least.

The treatment for bad luck anal cancer ...takes the form of a chemical and radiation  attack on the site of the malignant cells and nearby lymph nodes ....unfortunately because the cancer cells is  me it will hurt me too-and it starts tomorrow.
4 days chemo 5 weeks radiating my pelvis, four more days chemo at the end-standard procedure -no need for the dreaded colostomy but the radiation comes at a price-side effects could be horrendous. The temptation to not do it is quite high-maybe if I ate enough oranges it would go away? Perhaps some meditation would still my hidden stress and the cancer would retreat and disappear? I've read some fab books ...eating well, meditating may work. Thing is I already have a healthy lifestyle-I exercise I cycle I swim I eat real food not processed, I have had a lot of people say it doesn't seem right i should get cancer when I do all the right things so...reckon the thin blue line will have to start feeding chemicals into my body tomorrow.

So this blog will be the story of my treatment. Sometimes it will be about how I feel sometimes it will include gory medical bits. It will include the things I add in like meditation, making smoothies with the juicer Rowan has lent me, my attempts to find an attractive plastic bath to sit in when the radiation burns are so bad I'm on morphine (yep it gets that bad)-why are british Sitz baths ugly old person medical applainces when in America you can buy these pretty ones (silly I know but it would be a happier Jen sitting in this one rather than this one
I guess this blog  will interest fellow sufferers mostly, hopefully some doctors, perhaps some strong stomached friends and relations...
  • website that best explains anal cancer is the Macmillan site
  • Joni Mitchell's beautiful song about wild and impossible dreams Amelia